Knowledge, Quality of Life and Adaptation Level among Patients with Thalassemia

Korany, Nora Ramadan; Ali, Zeinab Hussien; Mahmoud, Baghdad Hussein

doi:10.21608/hijnrp.2025.406683.1403

Knowledge, Quality of Life and Adaptation Level among Patients with Thalassemia

Document Type : Scientific Research Periodical

Authors

¹ faulty of nursing - halwan university

² Medical surgical. Faculty of nursing, helwan university

³ Assistant Professor of Medical Surgical Nursing, Faculty of Nursing, Helwan University, Egypt

10.21608/hijnrp.2025.406683.1403

Abstract

Thalassemia is a chronic disease that presents a diverse range of serious clinical and psychological challenges. These challenges not only do effect on the patients’ physical, emotional and social functioning but also their quality of life so patients needed to adapted with these disease. Aim of the study: To assess Knowledge, quality of Life and adaptation level among patients with thalassemia. Research design: A descriptive design was used. Setting: The study was conducted at general medicine department and the blood transfusion unit in Fayoum university hospital. Methods: A purposive sample of 80 adult patients from both genders with thalassemia. Tools: four tools were utilized for data collection. Tool (I): Structured interview questionnaire, Tool (II): patient's knowledge assessment questionnaire, Tool (III): World Health Organization Quality of Life-BREF (WHOQOL-BREF) questionnaire Tool (IV): Roy's Adaptation Model questionnaire. Results: There was unsatisfactory level of knowledge and moderate quality of life and adaptation related to patients with thalassemia. Conclusion: It can conclude that, the highest percentage of patients had unsatisfactory knowledge and moderate level of adaptation and quality of life related to thalassemia. Recommendations: Based on research data application of the educational program based on Roy's adaptation model had a positive effect on the outcomes of patients with thalassemia

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