امام, Ø. (2024). The Coping Pattern of Parents for their Children Complaining from Spinal Muscular Atrophy. Helwan International Journal for Nursing Research and Practice, 3(5), 373-389. doi: 10.21608/hijnrp.2024.261667.1103
اسماء اØمد امام. "The Coping Pattern of Parents for their Children Complaining from Spinal Muscular Atrophy". Helwan International Journal for Nursing Research and Practice, 3, 5, 2024, 373-389. doi: 10.21608/hijnrp.2024.261667.1103
امام, Ø. (2024). 'The Coping Pattern of Parents for their Children Complaining from Spinal Muscular Atrophy', Helwan International Journal for Nursing Research and Practice, 3(5), pp. 373-389. doi: 10.21608/hijnrp.2024.261667.1103
امام, Ø. The Coping Pattern of Parents for their Children Complaining from Spinal Muscular Atrophy. Helwan International Journal for Nursing Research and Practice, 2024; 3(5): 373-389. doi: 10.21608/hijnrp.2024.261667.1103
The Coping Pattern of Parents for their Children Complaining from Spinal Muscular Atrophy
Abstract Spinal Muscular Atrophy (SMA) is a life-limiting genetic disorder affects the muscles and causes weakness . Parents of children with SMA face significant challenges in caring for their children, including coping with the emotional and practical aspects of the condition. Aim of the study: To assess the Coping pattern and awareness of parents for their children complain from spinal muscular atrophy Research design: A descriptive research design was used in this study. Setting: The study was conducted in the outpatient clinics of Health Insurance in Cairo two clinics in Naser clinic and clinic of Naser City Hospital Sample: A purposive sample was used in this study. The sample was equal 367 of parents of diagnosed cases with SMA. Tools: One tool used: structured Interviewing questionnaire. It consist of 6 parts: 1) Socio-demographic characteristics, 2) Family and child past history, 3) Parents’ knowledge related to SMA disease, 4) Parents’ attitude regarding their SMA children , 5) The parents' reported practice regarding their children motor skills, 6) Jaloweic Coping Scale. Results: The study result revealed that, 79.6% of parents had poor level of knowledge, 51.2% had adequate level of practice, 52.3% had negative attitude regarding Children Complaining from SMA. Also, 70.8% had positive coping pattern. (P= 0.000). Conclusion: Significant relation between knowledge, practice, attitude and coping and all demographic characteristics except residence, job with attitude. (P= 0.000). Recommendation: Procedure pamphlets and booklet containing all essential information about SMA should be disseminated at hospitals among parents of children complaining from SMA.
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